Over the past eight months I have been replying to messages of family and friends around the world and basically functioning according to two different time zones. Answering questions about EM has proven to be hard. How can you explain about a rare disease that even doctors find hard to explain or understand?!
So one sleepless night, a conversation haunted me. I had been thinking how little awareness there is about Erythromelalgia, which is the main reason it often goes undiagnosed. What if EM was given a voice? The following fictional interview with EM is the result of that long sleepless night.
Reporter: Hello and thank you for doing this interview.
Guest: Thank you for inviting me under the spot light.
Reporter: Do you mind telling our readers what’s your full name?
Guest: Erythromelalgia but people call me EM for short
Reporter: Oh what an interesting name! How old are you EM?
Guest: Well you wouldn’t believe it if I told you, but I’ve been around since the late 1800’s.
Reporter: No way! I would have never guessed! How come you are not so famous already?
Guest: I’m unique I guess. My talent is so rare not so many understand it, not even experts!
Reporter: For those who don’t know about you yet, can you share with us your talent?
Guest: (smirks) I was hoping you would ask. I can make people flare.
Reporter: Flare?! What’s so special about that?
Guest: Flaring makes people burn alive in their own skin, without even knowing what hit them.
Reporter: Ohhh!! That sounds intense!
Guest: It is very much so. The trick is causing them to flare badly, until they give up everything to me.
Reporter: Uhmmm…Can you be more specific?
Guest: Easy, I start by flaring their limbs until they give up their mobility and sleep, then I let my fire rage all over their body until they give up all hope in life.
Reporter: Annnnd why do you do that?
Guest: Cause no one has stopped me yet.
Reporter: On whom do your tricks work best?
Guest: Everybody! Flaring affects babies, kids, teens, adults and elderly of both genders.
Reporter: Do you think there are other talents out there that can match yours?
Guest: You will have to ask NORD about that.
Reporter: What’s NORD? .
Guest: National Organization for Rare Disorders/ Diseases.
Reporter: (feeling uncomfortably hot and flaring red) Excuse me I’m going to have to end this interview short, I don’t feel so well.
Guest: (smirks) No problem at all, I have that effect on people.